IT’S WORLD RARE DISEASE DAY!!! TASHA HERE ON TODAY, I’M CHOOSING TO SHARE MY RARE DISEASE DAY MOMENT….FEBRUARY MARKS 28 YEARS OVE LIVED WITH MYASTHENIA GRAVIS I ALWAYS FORGET THAT’S A VERY LONG TIME RIGHT?!?!IT’S KIND OF MIND BLOWING TO THINK ABOUT TOO. I CAN’T IMAGINE WHAT WENT THROUGH MY PARENTS HEAD’S WHEN THEY FOUND OUT WHEN I WAS 6YRS OLD. FOR YEARS MY DAD COULD NEVER PRONOUNCE IT CORRECTLY (GOD REST HIS SOUL) BUT HE ALWAYS SHOWED UP FOR ME. MY MOM HAS HANDLED THIS LIKE A TRUE SOLDIER AND CONTINUES TO EVERY DAY!! BOTH OF THEM ENCOUNTERED ME TO LIVE MY LIFE THEN AND NOW! AS I REFLECT ON RARE DISEASE DAY 2021, I WANT TO ENCOURAGE EVERY PERSON LIVING WITH WHATEVER DISEASE THAT THEY HAVE….WE HAVE 1 BEAUTIFUL LIFE TO LIVE IN THE MIDDLE OF OUR RARE DISEASE JOURNEY!!! SO I WANT YOU TO CELEBRATE THOSE VICTORIES AS YOU SEE FIT! IT’S SMALL TO MANY BUT IT’S HUGE TO YOU/US!!! COUNT YOUR BLESSINGS AND THE MULTIPLY THEM BY 1 TRILLION!! WE GOT THIS!!
Meet Mika! Our very first male interview AND international interview! How awesome is that!! I had the privilege to speak to our talented MG Brother all the way from Denmark! It was so interesting to hear the way healthcare is done verses here in the states. Mika is also one gifted musician! Through his MG journey he continues to bring music to life! Check out our interview!
LaKesha and I had a great time during her interview. She gave us a little background to her journey and then we had some great laughs. I am so grateful to come across some awesome Myasthenia Gravis Warriors!
It is extremely important to get the word out about Myasthenia Gravis. The best way to do it is to speak with those that live with it!
THE STRENGTH OF AN MG WARRIOR IS AMAZING TO SEE! SOME DAYS MAY SEEM OVERWHELMING, LONG, TIRESOME, AND A DRAG BUT THE FIGHT WE GIVE EVERY DAY OUTWEIGHS IT!
WE HAVE SO MANY HIDDEN TALENTS WITHIN OUR COMMUNITY. SO MANY EDUCATED WARRIORS SHOWING THIS WORLD WHAT THEY’RE MADE OF!!!! PLEASE NEVER LET THAT GO!! KEEPING FIGHTING.
MOST IMPORTANTLY KEEP LIVING!!!
HERE’S OUR VERY FIRST LIVE INTERVIEW WITH TEESH!
SUBSCRIBE TO OUR NEW YOUTUBE CHANNEL AND CHECK OUT “MEET TEESH” GET A GLIMPSE OF HER JOURNEY WITH MYASTHENIA GRAVIS! https://youtu.be/7sErVygffi8
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Posted: February 28, 2021 by Tasha White Leave a Comment
RARE DISEASE DAY!!
IT’S WORLD RARE DISEASE DAY!!! TASHA HERE
ON TODAY, I’M CHOOSING TO SHARE MY RARE DISEASE DAY MOMENT….FEBRUARY MARKS 28 YEARS OVE LIVED WITH MYASTHENIA GRAVIS 
I ALWAYS FORGET 
THAT’S A VERY LONG TIME RIGHT?!?!IT’S KIND OF MIND BLOWING TO THINK ABOUT TOO. I CAN’T IMAGINE WHAT WENT THROUGH MY PARENTS HEAD’S WHEN THEY FOUND OUT WHEN I WAS 6YRS OLD. FOR YEARS MY DAD COULD NEVER PRONOUNCE IT CORRECTLY 
(GOD REST HIS SOUL) BUT HE ALWAYS SHOWED UP FOR ME. MY MOM HAS HANDLED THIS LIKE A TRUE SOLDIER AND CONTINUES TO EVERY DAY!! BOTH OF THEM ENCOUNTERED ME TO LIVE MY LIFE THEN AND NOW! AS I REFLECT ON RARE DISEASE DAY 2021, I WANT TO ENCOURAGE EVERY PERSON LIVING WITH WHATEVER DISEASE THAT THEY HAVE….WE HAVE 1 BEAUTIFUL LIFE TO LIVE IN THE MIDDLE OF OUR RARE DISEASE JOURNEY!!! SO I WANT YOU TO CELEBRATE THOSE VICTORIES AS YOU SEE FIT! IT’S SMALL TO MANY BUT IT’S HUGE TO YOU/US!!! COUNT YOUR BLESSINGS AND THE MULTIPLY THEM BY 1 TRILLION!! WE GOT THIS!!
Posted: February 13, 2021 by Tasha White Leave a Comment
Meet Mika!
Meet Mika! Our very first male interview AND international interview! How awesome is that!! I had the privilege to speak to our talented MG Brother all the way from Denmark! It was so interesting to hear the way healthcare is done verses here in the states. Mika is also one gifted musician! Through his MG journey he continues to bring music to life! Check out our interview!
https://youtu.be/8SIiasq6DSk
Follow and SUBSCRIBE on ALL social media platforms! http://listen.lt/MikaFilborneStilleBl… http://listen.lt/MikaFilborneTheElfSong https://www.youtube.com/watch?v=Ox7Yn… https://www.instagram.com/filbornemusic/ https://twitter.com/mikafilborne https://www.facebook.com/FilborneMusicSHOW LESS
Posted: December 21, 2020 by Tasha White Leave a Comment
Meet LaKesha!!
LaKesha and I had a great time during her interview. She gave us a little background to her journey and then we had some great laughs. I am so grateful to come across some awesome Myasthenia Gravis Warriors!
It is extremely important to get the word out about Myasthenia Gravis. The best way to do it is to speak with those that live with it!
Be sure to share!
https://youtu.be/WrGudIo0gy0
Posted: December 21, 2020 by Tasha White Leave a Comment
Adopt an MG Family!
WE CANNOT EXPRESS HOW MUCH THIS MOMENT TRULY MEANS TO US! THE LOVE AND SUPPORT WAS AND CONTINUES TO BE OUTSTANDING!! WE THANK YOU ALL!!
YOU MADE OUR VERY FIRST ADOPT AN MG FAMILY FUNDRAISER A PURE SUCCESS!!
TO THE FAMILY, IT WAS OUR PLEASURE TO BLESS YOU ALL DURING THIS HOLIDAY/GIVING SEASON!
NEXT YEAR WILL BE BIGGER AND BETTER AND THE YEARS TO COME!!
Posted: December 7, 2020 by Tasha White Leave a Comment
Meet Teesh!
THE STRENGTH OF AN MG WARRIOR IS AMAZING TO SEE! SOME DAYS MAY SEEM OVERWHELMING, LONG, TIRESOME, AND A DRAG BUT THE FIGHT WE GIVE EVERY DAY OUTWEIGHS IT!
WE HAVE SO MANY HIDDEN TALENTS WITHIN OUR COMMUNITY. SO MANY EDUCATED WARRIORS SHOWING THIS WORLD WHAT THEY’RE MADE OF!!!! PLEASE NEVER LET THAT GO!! KEEPING FIGHTING.
MOST IMPORTANTLY KEEP LIVING!!!
HERE’S OUR VERY FIRST LIVE INTERVIEW WITH TEESH!
SUBSCRIBE TO OUR NEW YOUTUBE CHANNEL AND CHECK OUT “MEET TEESH” GET A GLIMPSE OF HER JOURNEY WITH MYASTHENIA GRAVIS!
https://youtu.be/7sErVygffi8