St. Louis, Missouri mwwmg@mywalkwithmg.org

RARE DISEASE DAY!!

IT’S WORLD RARE DISEASE DAY!!! TASHA HERE ❄️😊ON TODAY, I’M CHOOSING TO SHARE MY RARE DISEASE DAY MOMENT….FEBRUARY MARKS 28 YEARS OVE LIVED WITH MYASTHENIA GRAVIS 😳 I ALWAYS FORGET 😂THAT’S A VERY LONG TIME RIGHT?!?!IT’S KIND OF MIND BLOWING TO THINK ABOUT TOO. I CAN’T IMAGINE WHAT WENT THROUGH MY PARENTS HEAD’S WHEN THEY FOUND OUT WHEN I WAS 6YRS OLD. FOR YEARS MY DAD COULD NEVER PRONOUNCE IT CORRECTLY 😂 (GOD REST HIS SOUL) BUT HE ALWAYS SHOWED UP FOR ME. MY MOM HAS HANDLED THIS LIKE A TRUE SOLDIER AND CONTINUES TO EVERY DAY!! BOTH OF THEM ENCOUNTERED ME TO LIVE MY LIFE THEN AND NOW! AS I REFLECT ON RARE DISEASE DAY 2021, I WANT TO ENCOURAGE EVERY PERSON LIVING WITH WHATEVER DISEASE THAT THEY HAVE….WE HAVE 1 BEAUTIFUL LIFE TO LIVE IN THE MIDDLE OF OUR RARE DISEASE JOURNEY!!! SO I WANT YOU TO CELEBRATE THOSE VICTORIES AS YOU SEE FIT! IT’S SMALL TO MANY BUT IT’S HUGE TO YOU/US!!! COUNT YOUR BLESSINGS AND THE MULTIPLY THEM BY 1 TRILLION!! WE GOT THIS!!

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